1. Preparing a DMP
2. Documenting and Organizing Data
3. Storing Data and Data Security
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Privacy-sensitive Data

Personal data is any information relating to an identified or identifiable natural person (‘data subject’). Personal data is by definition privacy-sensitive and deserves special attention, both from an ethical as from a legal point of view. This applies in the highest degree to certain personal data that is considered particularly sensitive, such as information on race, ethnicity, health, criminal record, sexual orientation, beliefs and economical status. In this part of the course you will leam to:

  • Understand the concept of privacy by design;
  • Translate the seven principles of data protection from the European General Data Protection Regulation to your own situation;
  • Recognise when data is identifiable and lean about measures you can take to protect your participant’s privacy;
  • Understand how sharing of research data that relates to people can often be achieved using a combination of obtaining consent, anonymising data and regulating data access.

Access to Privacy-Sensitive Data

If and how you can make personal data available, depends on the level of sensitivity of your data. The more sensitive, the more restrictions and safeguards need to be put in place to make sure the data does not fall into the hands of unauthorised persons both during and after research.

To determine where the privacy risks lie for your data you will have to do a Data Privacy Impact Assessment (DPIA).

For more information, you can visit the guide Handling Personal Data

Towards the data subjects, you need to be transparent regarding the possible reuse, or retaining of the data for verification requirements, and get their prior consent.